We had the immense pleasure of welcoming Line Renaud and Thierry Lhermitte, patron of the Fondation pour la Recherche Médicale, to discuss science, rare diseases, and the future of medical research.

This meeting was an opportunity to highlight the work done by Professor Canaud and his team in the field of genetic diseases, particularly CLOVES syndrome. Thanks to their dedication and expertise, new perspectives are opening up for patients and their families, offering hope for a future where genetic diseases will no longer be insurmountable challenges, but obstacles to overcome through advances in medical research.

During the discussion, the importance of donations and partnerships in funding medical research and the role of engaged celebrities in raising public awareness of health issues, including rare diseases, were emphasized.