Marine Lamoureux from La Croix L'hebdo followed Pr Guillaume Canaud and his teams at Hôpital Necker Enfants Malades for an incredible six-month journey - the treatment of children with CLOVES Syndrome.
CLOVES Syndrome is a very rare congenital disorder characterized by a combination of vascular, skin, spinal, and bone or joint abnormalities. Pr Canaud discovered a treatment, thus a turning point in the lives of these patients and their families.
If you’re interested in learning more about their experiences and the work of Pr Canaud and his teams, click here to read more. Stunning photos, by Florence Brochoire, and coverage of the challenging journey patients face and the daily activities of a team dedicated to making a difference in the lives of families.
Hats off to all the teams and people who contributed, and still are, to this mission. Teamwork makes the dream work!